• TheGrandNagus@lemmy.world
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    7 days ago

    Already widely used in the western world, glad we’re catching up. This will save lives, hopefully lessen strain on the NHS, reduce waiting times, and reduce the misery of kids silently suffering without proper support.

    Goes without saying, but this data should remain with the NHS, and the only time it should leave is when appropriately anonymised for medical research purposes (which already happens, the NHS helps a shit load of international researchers).

    • wewbull@feddit.uk
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      6 days ago

      It should not remain in the NHS in my opinion. It should be deleted after the analysis is done.

      • Alex@lemmy.ml
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        6 days ago

        You don’t think having a full genome and medical history of everyone who’d been in contact with the NHS would be useful to researchers?

        • wewbull@feddit.uk
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          6 days ago

          I’m sure it would be very useful. Doesn’t mean I want ANYBODY having that kind of information.

      • happydoors@lemmy.world
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        6 days ago

        Minnesota, here. New parent. Can confirm! The full on DNA test is optional. Parents can make informed decisions and prepare for new lifestyles of supporting a kid that’s differently abled.