To those of you with sensory issues (I believe this is pretty common, right?) have you noticed them changing as you grow older? Have they gotten easier to handle, harder, or stayed the same? In fact, if you feel like “going there” and sharing - please feel free to even express what they feel like.
No need to share what they are, if you don’t feel like it. Share what you’d like.
I feel this terribly deeply. I wanna send like e-hugs because it’s crazy how bad life can be pre-diagnosis. I can’t say what it’s like on the other side of the fence, but I can say for sure there’s some mental scars that I will probably always hold that won’t swap. And maybe I don’t care if it swaps so much anymore, because I know who I am and I am valid so you know - there’s that.
I’m glad you’re holding your own and not getting harmed (as much more than likely) anymore. Because you deserve happiness, and people are hella quick to take it from people they don’t understand because they don’t believe they deserve anything less than the floor.
I’ve been kicking around the idea of disability for the past year or so. Because I know I can get it, but I also know it’s a long process. I ultimately want to marry my partner if plausible, and I think that’d drive a wedge in the works. There was a point where I was so crippled with pain that I couldn’t really do anything. I am on some new experimental treatment that has helped but there’s still times when my body just shuts down, and this past week was a “kind” lesson in it. If you have the time and the care (as in you do not have to do this) you mind hitting up my inbox and telling me some more about disability x gigs?
Still relatively new to Lemmy and can’t figure out RN how to dm you, but I am not in the US, so most likely we are not in the same country.
I can tell you broad strokes though - I got super lucky with my therapist at that time. Sadly he’s retired now :( I was super exhausted, had gotten out of hospital and then diagnosis and at the same time (since in paper I looked like an easy candidate to find work for) the unemployment agency was hounding me. I told my therapist as an off-comment “I wish I didn’t have to do shit for the rest of the year.”
He said that can be arranged and I thought he was joking - it was October or something. Nope, he stalled and his practice became unreachable. All I could tell the unemployment agency was that I didn’t hear back and I don’t know what’s going on until they got frustrated and backed off. Come new year, everything went back to normal and it went fast-ish. Took maybe a year in total? I think less, maybe roughly 9 months?
I didn’t realize what happened until after the fact, but he bought me the time I needed to process things at that time.